Consumer Resources

Organizations/Associations
Community/Social Services
Government
Care Management

In an effort to better assist you, NAPGCM has divided our lists of resources into categories. All you have to do is to click on the category you’d like to explore.

Organizations/Associations

AARP
AARP (formerly known as the American Association of Retired Persons) is a nonprofit membership organization dedicated to addressing the needs and interests of persons 50 years and older.  Through information and education, advocacy and service, they seek to enhance the quality of life for all by promoting independence, dignity, and purpose.

Alzheimer’s Association
The Alzheimer’s Association is the largest national voluntary health organization dedicated to funding research into the causes, treatments, prevention, and cure of Alzheimer’s disease and to providing support to the four million Americans with the disease, their families, and caregivers.

Alzheimer’s Disease Research (BrightFocus Foundation)
BrightFocus Foundation is a nonprofit organization supporting research and providing public education to help eradicate brain and eye diseases, including Alzheimer’s disease, macular degeneration, and glaucoma. They are working to save mind and sight.

Alzinfo.org
Alzinfo.org is a tool of the Fisher Center for Alzheimer’s Research Foundation to educate people about this devastating disease.  The mission of the website is to educate, engage, and create an online community with 24 hours a day, 7 days a week access to information and support via online chats, message boards and the most comprehensive resource databases available.

American Association for Homecare
AAHomecare is the unified voice that represents all the elements of homecare under one roof.  From home medical equipment to home health services and from rehab technology to respiratory/infusion therapy.  AAHomecare is dedicated to working to advance the value and practice of quality health care services at home.  With over 3,000 members, AAHomecare is building a community of support for the homecare industry.

American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.  Their website contains valuable resources including prevention and risk factors, treatment methods, detection guidelines, and patient services that help cancer patients and their families.

The Henry J. Kaiser Family Foundation (Consumer Resources: Understanding Health Reform)
Kaiser is a non-profit, private operating foundation focusing on the major health care issues facing the U.S., as well as the U.S. role in global health policy. They serve as a non-partisan source of facts, information, analysis and journalism for policymakers, the media, the health care community, and the public.

National Academy of Elder Law Attorneys
The National Academy of Elder Law Attorneys, Inc., is a nonprofit association which assists lawyers, bar organizations, and others who work with older clients and their families.  Established in 1987, the Academy provides a resource of information, education, networking, and assistance to those who must deal with the many specialized issues involved with legal services to the elderly and disabled.

National Alliance for Caregiving
A very good resource for caregiving families and professionals, NAC is a Bethesda based association of caregiving professional organizations (include GCM) that provides information, support, and national advocacy on behalf of caregivers.  They have accomplished many admirable reports, including providing an excellent guide to other websites with information on caregiving.  NAC’s site is an excellent source of information for professionals looking for access to primary information on national issues on caregiving.

National Association of Social Workers
The National Association of Social Workers (NASW) is the largest organization of professional social workers in the world.  NASW serves nearly 155,000 social workers in 55 chapters throughout the United States, Puerto Rico, the Virgin Islands, and abroad.  NASW was formed in 1955 through a merger of seven predecessor social work organizations to carry out three responsibilities:  strengthen and unify the profession; promote the development of social work practice; and advance sound social polices.  Promoting high standards of practice and protecting the consumer of services are major association principles.

National Chronic Care Consortium
The National Chronic Care Consortium is a strategic alliance of individuals and organizations across industry segments and professions committed to chronic illness care reform.  They engage people in practical, collaborative methods to improve chronic care for America’s largest, highest-cost, and fastest-growing customer group.  They work to improve care under current market conditions and seek to change payment methods, health policies, management systems, and clinical interventions where they impeded the ability of consumers to get the care they want and of plans, programs, and providers to offer effective care.

National Citizens’ Coalition for Nursing Home Reform
The mission of the National Citizens’ Coalition for Nursing Home Reform is to improve the quality of life of residents in the nation’s nursing homes.

National Family Caregivers Association
The National Family Caregivers Association offers services in the areas of information and education, support and validation, and public awareness and advocacy, toward the goal of minimizing the disparity between a caregiver’s quality of life and that of mainstream Americans.

National Guardianship Association
The mission of the National Guardianship Association is to provide educational, training, and networking opportunities for guardians; to promote the highest levels of values, standards and ethics; and to ensure a nationally recognized standard of excellence.

National Senior Citizens Law Center
The National Senior Citizens Law Center (NSCLC) advocates nationwide on behalf of low-income elderly individuals and persons with disabilities.  It provides litigation assistance, research and consulting support, national policy representation, training and manuals, and periodicals.  Substantive areas covered on the site include: age discrimination, Americans with Disabilities Act, Medicaid, Medicare, nursing homes, Older Americans Act, pension rights, and social security.  The site includes articles and legal documents on many of these topics.  The Center’s publications, including numerous manuals and a newsletter, are described, but are for sale in print form only.

Nurse Competence in Aging
Nurse Competence in Aging (NCA) is improving the quality of healthcare older adults receive by enhancing the geriatric competence – the knowledge, skills, and attitudes – of the 400,000 nurses who are professionally identified as members of approximately 57 specialty nursing associations.

Stand Up for Health Care
Stand Up for Health Care is a project of Families USA, a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Working at the national, state, and community levels, they have earned a national reputation as an effective voice for health care consumers for 25 years.


 Community/Social Services

Administration on Aging Information on Older Persons and Services for the Elderly
Administration on Aging (AoA) “Elder Page” site contains many resources for the elderly that can be useful for attorneys as well.  There is a large nationwide searchable directory of 230 national and local agencies, health associations, and organizations.  There is a large compilation of general and statistical materials on-line.

Caregiver.com
The website of Today’s Caregiver Magazine.  This site has general information on caregiving and caregivers.  There are several different features from the current magazine on topics in caregiving and an archives of past articles.

ElderCare Online
Their goal is to provide information, education, and support to families caring for aging loved ones, especially those coping with Alzheimer’s Disease and related dementias.  They believe that whether you are caring for a spouse, parent, relative, or neighbor, you can learn and grow from the caregiving journey.  To that end, they provide knowledge, tools, and community to help caregivers improve the quality of life for both themselves and their aging loved ones.

Ethnic Elder Care
Ethnic Elder Care presents a comprehensive presentation of information about Alzheimer’s Disease and related dementias among ethnic minority elders in the United States.  Ethnic Elders is dedicated to promoting research, prevention and treatment of Alzheimer’s Disease and related disorders, and to providing education, support and assistance to ethnic minority elderly patients, their families, and caregivers.  This site contains articles, news, links, and a monthly newsletter.

Full Circle of Care
Helping family caregivers complete the cycle of care.

H.E.L.P.
H.E.L.P. is a community-funded, non-profit (charitable) information resource that assists older adults and their caring family and friends by providing information, planning and problem-solving services, on government programs and legal healthcare-related issues that especially impact older adults.

Healthfinder
Healthfinder is a free gateway to reliable consumer health and human services information developed by the U.S. Department of Health and Human Services.  Healthfinder can lead you to selected online publications, clearing houses, databases, websites, and support and self-help groups, as well as the government agencies and not-for-profit organizations that produce reliable information for the public.

Home Caregivers Accreditation of America
The mission of the Home Caregivers Accreditation of American (HCAOA) is to establish an accreditation for the new and growing field on in home non-medical companion caregiving for seniors and others at home who may be recovering from an illness, operation, or procedure.  Those accredited by HCAOA were confirmed to have followed our Standards and Guidelines on the date indicated and was confirmed to have had a business license (where required), a bond (often called a dishonesty bond), workmen’s compensation for caregiving employees, and business liability insurance.

Mesothelioma Group
With all the uncertainty, mesothelioma is a difficult diagnosis for anyone. But the loved ones of patients can go through a similarly hard time—especially when they’re the primary caregivers. Learn how you can help manage the health of your loved one while still taking care of yourself. The Mesothelioma Group provides up-to-date support and information for mesothelioma patients and family members.

National Institute of Health
This website shares – in a fast and cost-effective way – consumer health information about many of the diseases or health problems on which NIH conducts or supports research.  You can choose from this growing full-text collection of our most requested consumer health publications.

OurLastPassage.org
OurLastPassage.org is a public service website that offers guidance and support for people who aspire to die with courage, humility, and consideration for others. This website collates advice from many sources and invites users to share their memories of people who handled their dying gracefully. The website may be of interest to terminally ill patients, their families, and care managers.


 Government

Go4Life
Go4Life is a national web-based campaign designed to motivate people 50+ to incorporate exercise and physical activity into their daily lives. Go4Life offers a variety of online, evidence-based resources for older people, family members, health professionals, and organizations in one convenient location, as well as popular, free print materials on exercise and physical activity.

Healthcare.gov
Healthcare.gov is a federal government website managed by the U.S. Centers for Medicare and Medicaid Services (CMS) and is the official website for the Health Insurance Marketplace. Visit Healthcare.gov to learn more about the new health care law, benefits, and how to choose the right health insurance plan.

healthcare411.ahrq.gov
Healthcare 411 is a  bilingual series created by the Agency for Healthcare Research and Quality (AHRQ), which is part of the U.S. Department of Health and Human Services. The series is designed to help provide people with the latest research findings, news and consumer health care information.

Medicare Rights Center
Medicare Rights Center (MRC) is the largest independent source of health care information and assistance in the United States for people with Medicare.  Founded in 1989, MRC helps older adults and people with disabilities get good, affordable health care.  MRC’s website contains information about Medicare benefits, options and changes, examples of interesting cases we have dealt with, and resources for getting involved in our consumer advocacy work.  The site also contains updated information for consumers about the upcoming changes in Medicare and how those will affect their health coverage.

medicare.gov
The official U.S. Government site for people with Medicare.

Medicare Interactive
Medicare Interactive is brought to you by the Medicare Rights Center (MRC), a national not-for-profit, consumer service organization, dedicated to ensuring that older adults and people with disabilities get good affordable health care. Since 1989, MRC has been helping people with Medicare understand their rights and benefits, navigate the system and get the health care to which they are entitled.

ssa.gov
The official website of the U.S. Social Security Administration.

Veterans Administration’s Guide to Long Term Care
This website offers information for Veterans and caregivers/support persons about long-term care services and settings, links to helpful websites, decision aids, and personal stories that illustrate how to be involved in shared decisions about long term care. The Shared Decision Making aid is a useful tool in helping veterans, their families, and their support persons to decide how much assistance they need. Readers may also download a Caregiver Assessment form.


 Care Management

AboutAssistedLiving.org
Written by a group of medical professionals, AboutAssistedLiving.org is meant to serve as a resource for anyone looking for information on placing themselves or a loved-one into an assisted living or elder care facility. With over 40 years of combined medical experience in nursing, care, and billing, they have comprised a set of assisted living guides that are designed to help prepare you to make an informed and educated decision when it comes to care.

American Academy of Home Care Physicians
For over a decade, the American Academy of Home Care Physicians has served the needs of thousands of physicians and related professionals and agencies interested in improving care of patients in the home.  For every elderly person in a nursing home, there are three more people equally fragile and infirm living at home.  Home health has become the fastest growing segment of Medicare’s budget.

American Society of Bioethics and Humanities
The purpose of the American Society of Bioethics and Humanities (ASBH) is to promote the exchange of ideas and foster scholarship, research, teaching, policy development, professional development, and collegiality among people engaged in all the endeavors related to clinical and academic bioethics and the health related humanities.

American Society on Aging
The American Society on Aging’s (ASA) members comprise of the largest multidisciplinary national community of professionals working with and on behalf of older people.  The membership includes representatives of the public and private sectors, service providers, researchers, educators, advocates, health, allied health, social service, managed care and long-term care and mental health professionals, students and the retired, policy makers and planners.  For over 40 years, the American Society on Aging has been an active and effective resource for professional in aging and aging-related fields who want to enhance their ability to promote the well-being of aging people and their families.

Caregiver’s Home Companion
Caregiver’s Home Companion is a website entirely dedicated to helping family caregivers to the elderly.  Visit their website for the latest news, tips, advice, and access to our resource directory with over 40,000 national, regional and local caregiving resources.  We also offer supportive online forums and discussion boards for family elder-caregivers.

Council on Social Work Education
With funding from the John A. Hartford Foundation of New York City, the Council on Social Work Education (CSWE) has launched Strengthening Aging and Gerontology Education for Social Word (SAGE-SW).  SAGE-SW is dedicated to preparing ALL social workers to meet the needs of a growing aging population.

Last Acts
The Last Acts website is an on-line community dedicated to improving end-of-life care through the sharing of ideas and solutions by professional caregivers, educators, and consumers.  This site includes a resource center, updates on the campaign task force groups, news updates, reports on palliative care, family needs, service providers, education, and training.

Medicare Interactive
Medicare Interactive is brought to you by the Medicare Rights Center (MRC), a national not-for-profit, consumer service organization, dedicated to ensuring that older adults and people with disabilities get good affordable health care. Since 1989, MRC has been helping people with Medicare understand their rights and benefits, navigate the system and get the health care to which they are entitled.

SeniorDecision.com
SeniorDecision is the first website featuring free consumer ratings and reviews of nursing homes, assisted living centers, retirement communities, and home health care agencies.  The site is a forum for seniors, caregivers, and aging professionals to anonymously share their experiences and opinions on more than 79,000 senior care and housing services nationwide.